Communication and Decision Making in Advanced Heart Disease

Part 2: Conducting Goals of Care Conversations in Advanced Heart Disease

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Goals of Care: Clinician Preparation

Conversation Guide Starters
Understanding What is your understanding now of where you are with your heart?
Information preferences How much information about what is likely to be ahead with your heart would you like to know? How much do you want to be involved in making decisions about your HF care?
Prognosis Share prognosis tailored to information preferences
Goals If you heart worsens, share are your most important goals?
Fears/Worries What are your biggest fears and worries about the future with your heart?
Function What abilities are so crucial to your life that you can’t imagine living without them?
Tradeoffs If you become sicker, now much are you willing to go through for the possibility of gaining more time?
Family How much does your family know about your priorities and wishes?

View the interviews below and match each with the appropriate Conversation Guide category.

1. Ask-Tell-Ask

  • Understanding
  • Information preferences
  • Prognosis
  • Goals
  • Fears/worries
  • Function
  • Tradeoffs
  • Family




2. Talking About Prognosis

  • Understanding
  • Information preferences
  • Prognosis
  • Goals
  • Fears/worries
  • Function
  • Tradeoffs
  • Family




3. Asking About the Big Picture

  • Understanding
  • Information preferences
  • Prognosis
  • Goals
  • Fears/worries
  • Function
  • Tradeoffs
  • Family





Conversation Flow
Set up the conversation
-Introduce foals of care and benefits
I am hoping we can talk about where things are with your heart and where they might be going.
Given your recent hospital stay, we are in a different place now. It seems like a good time to talk about what now.
Is this OK?
Assess understanding and information preferences What is your understanding now of where you are with your heart?
How much information about what is likely to be ahead with your heart would you like to know?
Share prognosis
-Tailor information
-Allow silence, explore emotion
I am worried that time may be short or this may be as strong as you get.
Explore key topics What are your most important goals if your health worsens?
What are your biggest fears and worries about your future health?
What gives you strength as you think about the future?
What abilities are critical to you?
If you become sicker, how much are you willing to undergo to gain more time?
Close conversation
- Summarize what you heard
- Make a recommendation
- Affirm your commitment to the patient
It sounds like, XXX is very important to you.
Given your goals and priorities, and what we know about your heart condition, I recommend XXX. Here is what I can do now that will help you get those important things.
Overall, my experience tells me that more XXX would do more harm than good at this point. We are in this together.
Document the conversation in medical record.
Assist patient in completing advance directive, if appropriate.

View the interview below and match it with the appropriate Conversation Flow category.

View Mrs. Willowbee and check the approaches used in the interview.

  • Set up the conversation
  • Assess understanding
  • Share prognosis
  • Tailor information
  • Allow silence, explore emotion
  • Explore key topics
  • Close conversation